Boxing Vs Battens Disease

alt

An unusual boxing exhibition is set to take place on top of Ireland’s tallest mountain Carrauntoohil, Co. Kerry on the 14th of August.

Prize-fighter Champion Willie Casey and Ireland’s first female professional Christina McMahon, along with Kerry’s Willie Byrne and Naomi O’Brien and other National Champions will battle it out for battens disease almost 3,500 feet …up Ireland’s highest peak. The boxing ring will be airlifted to the summit via helicopter with RTE news cast covering the day’s events.

alt

The Cashen Vale and Macroom Boxing Clubs have undertaken this Fundraising event on behalf of the Heffernan family whose children 4 year old Saoirse and 2 year old Liam have been diagnosed with the fatal Battens disease, which will eventually end their lives if a cure isn't found. and have been asking boxers, friends, fans and supporters to join with them and show their solidarity with parents Mary, Tony & Saoirse and Liam.

The only hopeful treatment for Saoirse and Liam, are clinical trials being held at Doernbecher Children's Hospital at Oregon Health & Science University in the US.

The organisers are appealing to everybody to please support this massive event, which will hopefully be a Guinness world record when completed.

Those who wish to donate can email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

Information: Batten disease (also known as Spielmeyer-Vogt-Sjögren-Batten disease) is a rare, fatal autosomal recessive neurodegenerative disorder that begins in childhood. It is the most common form of a group of disorders called neuronal ceroid lipofuscinosis (or NCLs).

 

alt

Information: Carrauntoohil or Carrantuohill — from Irish: Corrán Tuathail, meaning “Tuathal’s sickle / Tuathal’s serrated mountain”) is the highest peak in Ireland. Located in County Kerry, it is 1,038 meters (3,406 ft) tall and is the central peak of the Macgillycuddy’s Reeks range. There are two other peaks in this range that are above 1,000 m—Beenkeragh (1,010 m) and Caher (1,001 m). The peak of Carrauntoohil is topped by a large metal cross 5 meters (16 ft) tall.

Last Updated (Saturday, 31 July 2010 15:50)